Trying to make it through: The experience of African American caregivers of youth with traumatic brain injury. A grounded theory study
Abstract
The purpose of the study was to examine the experience of African American caregivers of youth with traumatic brain injury. The sample consisted of 15 caregivers from the Children's Hospital of Michigan Stepping-Stone Brain Injury Day Treatment Program. The participants completed a demographic survey, individual interview, and were invited to attend a focus group at the conclusion of the study. Based on grounded theory techniques, the study results indicated that these African Americans felt pressured to adhere to cultural and religious expectations when faced with the challenging circumstances of caring for a child with traumatic brain injury. According to the respondents, as African Americans they believe they should always exemplify strength and have faith in God when facing a challenging situation. Some caregivers were able to move forward with their lives only after sharing their TBI experience with others. The findings provide a foundation on which to base interventions that identify, support, and strengthen existing resources for caregivers. A better understanding of caregivers' needs promotes better support, thus affecting the outcomes of children with traumatic brain injury.
Recommended Citation
Keita Rone Wilson,
"Trying to make it through: The experience of African American caregivers of youth with traumatic brain injury. A grounded theory study"
(January 1, 2009).
ETD Collection for Wayne State University.
Paper AAI3350358.
http://digitalcommons.wayne.edu/dissertations/AAI3350358
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